Today is World AIDS Day. Please join me and activists across the US in demanding a moratorium on molecular HIV surveillance. -DR
People Living with HIV Need Comprehensive Education, Consent and Safeguards on Our Data
HIV surveillance is widely recognized as a public good. Public health leaders often say that they count on surveillance data to guide their interventions. However, for people and communities affected by HIV, surveillance may act as a double-edged sword, especially when it participates in stigmatizing and even criminalizing them.
This call addresses the stigmatizing and criminalizing potential of HIV surveillance, focusing on a concerning set of techniques and practices that have become more commonplace in recent years: molecular HIV surveillance (MHS), or cluster detection and response.
The U.S. Department of Health and Human Services, state and local health departments and researchers are re-using medical data collected from people living with HIV for epidemiological surveillance, prevention, and “disease intervention” efforts. MHS data is collected and analyzed without consent from people living with HIV, lacks data protection assurances, and its use is becoming increasingly widespread.
We, the below signed organizations and individuals, demand the Centers for Disease Control and Prevention (CDC) issue an immediate moratorium on the use of MHS as a pillar of the Ending the HIV Epidemic: A Plan for America (EHE) until adequate safeguards protecting the privacy and autonomy of people living with HIV are implemented.
FULL DETAILS AND SIGN ON LETTER HERE:
Open Letter to the CDC: Networks of People Living with HIV Demand a Moratorium on Molecular HIV Surveillance













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